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Information for those who have or know someone with AMC

These TAG factsheets provide general information and advice on different topics around Arthrogryposis Multiplex Congenita (AMC). They are the property of TAG and should not be altered without permission.

General advice factsheets

About Arthrogryposis

Identifies the three groups of conditions under the Arthrogryposis 'umbrella' term and looks at some of the most common conditions categorised under these headings.

SMA with Arthrogryposis

Provides information about congenital Spinal Muscular Atrophy with Arthrogryposis including diagnosis, treatment, prognosis, prevention and parental concerns.

Pregnancy and Arthrogryposis

Genetic Counselling

Explains what you can expect when attending a genetic counselling appointment and how you may wish to prepare for the appointment.

Prenatal Diagnosis of Arthrogryposis

Common questions if you have received a pre-natal diagnosis of Arthrogryposis Multiplex Congenita (AMC) including What is AMC? What are the affects of AMC? What can be learnt from scans?

And Baby Makes Three

A case study from one of our members, Ellen Bird.

Children and Arthrogryposis Multiplex Congenita (AMC) factsheets

When Your Baby has Arthrogryposis

A guide to services and a glossary of terms for when your baby has been diagnosed with Arthrogryposis Multiplex Congenita (AMC). 

Growing Up

Discusses growing up with a disability and some of the challenges you may face.

Information for Schools

Some of the factors schools need to consider should a pupil with Arthrogryposis Multiplex Congenita (AMC) be enrolled at their school.

Moving to Secondary School

Items to consider when a child moves to secondary school including: Statement of special educational needs, mobility solutions and useful organisations.

Personal Care

Items to consider when a child moves to secondary school including: Statement of special educational needs, mobility solutions and useful organisations.

Discusses personal and intimate care and how it can be a very important aspect of assistance for someone with Arthrogryposis Multiplex Congenita (AMC) or any disability. 

Siblings - A Guide for Parents

Positive and negative issues for siblings of children with disabilities and the types of support siblings may need.

Talking to Your Child About Arthrogryposis

Answers questions you may have about talking to your child about Arthrogryposis Multiplex Congenita (AMC) such as how to explain to your child about their AMC (How can I help my child to accept their AMC?) and more.

Information and Case Studies for Medical Professionals

Uterine Structural Anomalies and Arthrogryposis—Death of an Urban Legend

Amyoplasia Revisited

Amyoplasia Involving Only the Upper Limbs or Only Involving the Lower Limbs with Review of the Relevant Differential Diagnoses

Oligohydramnios Sequence Revisited in Relationship to Arthrogryposis, With Distinctive Skin Changes

Review of X-Linked Syndromes with Arthrogryposis or Early Contractures—Aid to Diagnosis and Pathway Identification

Arthrogryposis (multiple congenital contractures): Diagnostic approach to etiology, classification, genetics, and general principles

Failure to identify antenatal multiple congenital contractures and fetal akinesia – proposal of guidelines to improve diagnosis

All TAG factsheets are copyright of TAG and must not be changed.