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Peter Writes

Hello everyone,

We have had two smashing, well attended, and very successful gatherings at Eureka in Halifax, and Conkers in the Midlands, where we met old and new members.

The Trustees are trying very hard to arrange events to enable you to meet and chat with each other, and with other adults and children with Arthrogryposis, and have some extra entertainment for the children. You can see all the events TAG has planned below my letter here.

Unfortunately the BBQ is no longer available for the Margam Country Park meet on 26 August. We do have other plans, but please let Donna know if you are coming (Donna's email address is below) as numbers will be important for the catering.

Whilst I have your attention (I hope!) don’t forget about the Family Weekend in Coventry in October. Check the TAG Family Weekend page for full details of the weekend, including the cost. 

Please note the new address for sending cheques is TAG, Flat 22, Kirkland View, KENDAL, Cumbria, LA9 5EW.

The Elsom Skydive | North London Skydiving CentreIn memory of their sister Hannah, Katie and Alice Elsom completed a successful skydive on Saturday 5 August, raising funds for TAG.
To date they have raised £5,464.61, a fantastic acheivement. Read about their reasons for the skydive on JustGiving.

Congratulations Katie and Alice, and thank you from all of us at TAG for your support.

If you want to know more about being a Trustee or indeed any questions about the Family Weekend or other events then please phone Peter Lacey on 01530 810744 or 07989582249 or email via

Peter Lacey

15 August 2017

TAG Events

The Natural History Museum

Natural History Museum

The dinosaur may have moved to pastures new, but there's still plenty to see at The Natural History Museum.

Where: Cromwell Rd, Kensington, London SW7 5BD. TAG members will be meeting in the Deli Coffee Shop/Cafe on the Exhibition Road side.

When: Meet at 11am.

Cost: Entry to the Museum is free. Please bring your own food or eat in the Cafe on site.

Parking: There is limited Blue Badge parking at the Museum itself. If you need Blue Badge parking here please contact Peter Lacey as soon as possible with your request.

There are also Blue Badge parking bays Exhibition Road. As we are meeting on Sunday there is no Congestion Charge to pay at the weekend.

If you have any questions, please email Peter Lacey, who will try to answer them!


Margam Country Park

Margam Country Park - photo

Join TAG members in South Wales at Margam Park, Margam, Port Talbot, SA13 2TJ. We'll be meeting on Saturday 26th August, 2017, from 10am. Look out for the TAG banner!

Like Conkers and the Natural History Museum there is no set timetable. The idea again is for adults and children with and without Arthrogryposis to meet and chat. There are things to occupy the children, when needed(!) too.

Unfortunately there will not be a BBQ and we are making other arrangements for food.

Want to come along? Please let Donna know!

The event is totally free but please contact Donna at so she can plan for catering, or if you have any questions.

Many years ago, we had an event here and it was a great day. The park has more attractions added since then. There will be a couple of Trustees to chat to as well!


Our Dynamic Earth

Our Dynamic Earth - photo

We are meeting at Our Dynamic Earth, 112-116 Holyrood Road, Edinburgh, EH8 8AS. Visit the Our Dynamic Earth location page for a map and directions. Two of the Trustees, Peter Lacey and Hailey Nobbs, will be there to greet you from 10am and hopefully help you to get to know each other too.

The programme for Our Dynamic Earth is as follows:

  • Meet near the entrance – look for our banner! 10.00
  • Gather by the Galleries for tour 11.45
  • Gallery tour 12.00
  • Lunch break 13.30
  • Show Dome 14.00
  • Finish

If you want to stay and meet others afterwards there is no problem there. In fact that is what it’s all about isn’t it? This event is for both adults and children with Arthrogryposis – as indeed all our events are.

There is no charge for this event for our members and families.

If you have any questions please contact Hailey on Also, can you please let her know that you are coming.


The TAG Family Weekend

Family Weekend - faces drawn on fingersThe TAG Family Weekend takes place on  Saturday 21st and Sunday 22nd October 2017.

We will be gathering together at the Holiday Inn, North Coventry, CV2 2HP just off the M6 at Junction 2. We've chosen Coventry because it is in the Midlands, and the hotel is easily accessible from the motorway.

Want to arrive Friday night? Last year about 13 families arrived did this, adding a greater social element to the weekend. If you're a TAG Member travelling a large distance you might want to consider adding Friday night to your stay. 

Speakers and Subjects  We now have several very interesting speakers coming along. We have a paediatric consultant, and a physiotherapist from Great Ormond Street Hospital. We also hope the top UK maxillofacial consultant, from Nottingham Queen’s Medical Centre, will be there too.

We are having an employability workshop, a discussion session for older members, a carers advice group, and Maplins (the electronic group) will demonstrate and talk about having a ‘Smart Home’ (e.g. Amazon Echo, Google Home, Apple Home Kit, Hive, Ring, Hue, etc. etc.!).

During all of this, if you have brought children, they will be looked after and entertained all day on Saturday. On Sunday morning there will be time for a chat amongst ourselves before the AGM, and we will finish around midday.

Full details, including the cost, can be found on our dedicated Annual TAG Family Weekend page.

Read about last year's Family Weekend in this short report from Peter Lacey, just to whet your appetite. Family Weekend Report.


TAG News

The TAG Map

TAG Members UK Map 2017We'd like your opinion. The spread of TAG Members is the length and breadth of the UK, and you might not know who is nearby. We'd like to help Members reach out to each other, and thought a good place to start might be a map.

Tell Us What You Think

This map is an example of what we could do. you will see that there is no personal information displayed, only a location.

Here's how it might work:

1.  TAG Members willing to be contacted by other members let TAG know and we keep a list.

2.  Any member who wishes to meet other people from TAG checks out the map to see if someone is nearby and contacts TAG and asks to be put in touch.

We have always said that TAG's greatest strength is in shared experience and getting together to talk.

Although social media such as Facebook makes keeping in touch seem simple these days, many people don't like using it. We want to ensure any Member has a way to talk to other members if they wish to.

As an added bonus - what a great map this is. Look how many of us there are!

Please let us know what you think about displaying a TAG Map, whether you'd be willing to be on a TAG Contact List. Email us using the address or head over to Facebook and comment there.


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