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Peter Writes

Hello everyone,

It's now a week since our TAG event at Eureka National Children’s Museum and it was a great success. Although very crowded with members of the public several TAG families came along and we welcomed completely new family members too! It was great for us all to meet up; I really enjoyed chatting to everyone, and Eureka was good too!

All of which reminds me to remind you of our next events where we can meet up.

The first being Conkers on Saturday 29 July 2017 meeting at 11am. Please note it is SATURDAY not Sunday as originally shown.

However, our gathering at the Natural History Museum is on a Sunday 20 August 2017 meeting at 11am.

With either (or indeed both) of these events if you have any questions please contact me, Peter Lacey, especially if you need disabled parking at the Natural History Museum.

Also, just for some idea of numbers, I would be grateful if you would email me if you think you can come. You'll find full details for both events below.

The Trustees have now agreed the TAG subsidy and therefore the costs to you for our Family Weekend & AGM at the Holiday Inn Coventry North, M6 Junction 2, Hinckley Road, Coventry CV2 2HQ. 

Check the TAG Family Weekend 2017 page for full details later this week.

If you want to know more about being a Trustee or indeed any questions about the Family Weekend or other events then please phone Peter Lacey on 01530 810744 or 07989582249 or email via help@arthrogryposis.co.uk.

Peter Lacey
Chairman

19 June 2017


TAG Events

 Conkers

Conkers Discovery CentreDate: Saturday, 29 July 2017

Time: Meet from 11am until 5pm.We'll be gathering at the Cafe in the Discovery Centre by the main entrance.

This award-winning attraction is at The Heart of the National Forest on the borders of Derbyshire and Leicestershire, with easy access from the M42, the M1 and A50. For your Sat Nav the postcode is DE12 6GA.

It is a mix of indoor and outdoor experiences which will keep you and your family engaged for hours. The grounds and the majority of the facilities are accessible, apart from the obvious  e.g. high and low ropes, aerial walkway, etc.

The cost will be free for children and £4 for adults. Bring your own food and drink or buy it on site.

If you have any questions please contact me, Peter Lacey. I'm looking forward to see you there!

 

The Natural History Museum

Natural History Museum

The dinosaur may have moved to pastures new, but there's still plenty to see at The Natural History Museum.

Where: Cromwell Rd, Kensington, London SW7 5BD. TAG members will be meeting in the Deli Coffee Shop/Cafe on the Exhibition Road side.

When: Meet at 11am.

Cost: Entry to the Museum is free. Please bring your own food or eat in the Cafe on site.

Parking: There is limited Blue Badge parking at the Museum itself. If you need Blue Badge parking here please contact Peter Lacey as soon as possible with your request.

There are also Blue Badge parking bays Exhibition Road. As we are meeting on Sunday there is no Congestion Charge to pay at the weekend.

If you have any questions, please email Peter Lacey, who will try to answer them!

 

The TAG Family Weekend

Family Weekend - faces drawn on fingersThe TAG Family Weekend takes place on  Saturday 21st and Sunday 22nd October 2017.

We will be gathering together at the Holiday Inn, North Coventry, CV2 2HP just off the M6 at Junction 2. We've chosen Coventry because it is in the Midlands, and the hotel is easily accessible from the motorway.

Want to arrive Friday night? Last year about 13 families arrived did this, adding a greater social element to the weekend. If you're a TAG Member travelling a large distance you might want to consider adding Friday night to your stay. 

Speakers and Subjects  We now have several very interesting speakers coming along. We have a paediatric consultant, and a physiotherapist from Great Ormond Street Hospital. We also hope the top UK maxillofacial consultant, from Nottingham Queen’s Medical Centre, will be there too.

We are having an employability workshop, a discussion session for older members, a carers advice group, and Maplins (the electronic group) will demonstrate and talk about having a ‘Smart Home’ (e.g. Amazon Echo, Google Home, Apple Home Kit, Hive, Ring, Hue, etc. etc.!).

During all of this, if you have brought children, they will be looked after and entertained all day on Saturday. On Sunday morning there will be time for a chat amongst ourselves before the AGM, and we will finish around midday.

TAG is partly subsidising the cost of the weekend, which is still being finalised. We will let you know in early June. Keep those saving jars going!

Read about last year's Family Weekend in this short report from Peter Lacey, just to whet your appetite. Family Weekend Report.

 


TAG News

The TAG Map

TAG Members UK Map 2017We'd like your opinion. The spread of TAG Members is the length and breadth of the UK, and you might not know who is nearby. We'd like to help Members reach out to each other, and thought a good place to start might be a map.

Tell Us What You Think

This map is an example of what we could do. you will see that there is no personal information displayed, only a location.

Here's how it might work:

1.  TAG Members willing to be contacted by other members let TAG know and we keep a list.

2.  Any member who wishes to meet other people from TAG checks out the map to see if someone is nearby and contacts TAG and asks to be put in touch.

We have always said that TAG's greatest strength is in shared experience and getting together to talk.

Although social media such as Facebook makes keeping in touch seem simple these days, many people don't like using it. We want to ensure any Member has a way to talk to other members if they wish to.

As an added bonus - what a great map this is. Look how many of us there are!

Please let us know what you think about displaying a TAG Map, whether you'd be willing to be on a TAG Contact List. Email us using the address help@arthrogryposis.co.uk or head over to Facebook and comment there.

 


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