TAG Board of Trustees

Peter Lacey - Chair

I was/am mainly affected in my back and legs and was operated on very aggressively – by today’s standards – and successfully. I was lucky and had a normal education.

I worked in the finance side of a couple of companies in the UK. Then I got a job working in Papua New Guinea for their government. Pat and I loved it there for nearly eight years and both our sons were born there. I also worked in the Middle East for a couple of years. We decided to come home and we ran our own businesses.

I became involved in TAG over 20 years ago and in that time, until 11 years ago, I had been a committee member, treasurer, and Chairman. 

Donna Davis - Vice Chair

Hello, my name is Donna Davis, I live in Wales with my husband Chris and 2 children, Sarah - Louise and Brandon -  Lee.  I was born with Arthrogryposis, it affects me in my arms, wrists,  legs and feet. Most of my joints were fused at birth. 

I am a qualified level 2 nursery nurse and have worked voluntary for Home start and in numerous schools and  crèches with children between the ages of birth and 10 years old.

I have a lot of spare time and commitment that I can offer to TAG. 

Ana Crome - Secretary

I was born with AMC affecting my arms and my legs. I have had lots of physio and operations to help me have small movements in my arms, and to have the ability to walk.

I live alone and have an amazingly supportive partner. I went to my first AGM with TAG in 2016 and loved it. Great to meet others like myself. I love being part of the TAG family

Michael Ramsbottom - Treasurer

I am 36 and live in The Lakes. I have been in accountancy for 20 years so consider myself well placed to be the Treasurer of TAG. I learned of TAG after meeting my girlfriend Ana, who has AMC. We went to the 2016 TAG AGM and the delight on her face as she saw people with the same condition as her was a moment I shall never forget.

I have a cat called Jess or rather she has a human called Michael. In my spare time I enjoy playing the guitar and riding my Harley around The Lakes.

Hailey Nobbs

My name is Hailey. I was born with AMC in 1991. I now live with my husband, daughter and three Chihuahuas. I also have a 13 year old brother and 8 year old sister who I have a very close relationship with.

I have a degree in Early Childhood Studies and I am currently training to be a counsellor. Since finishing my degree in 2013 I have unfortunately been unsuccessful gaining employment. I would describe myself as a quiet, caring and passionate person who loves learning and exploring.

In my spare time I love to stay home; watching TV/films, colouring, textiles, origami and playing games. I also love exploring nature and wildlife, as well as spending quality time with my family.

Gail Newton

I was born with my legs all folded up and had many surgeries to straighten them, I have worn full leg callipers since I was 3 years old. I did not meet anyone else with Arthrogryposis until I was almost 40 when I attended my first TAG meeting. I loved it and have so enjoyed getting to know many people who cope with issues as I do and still thrive in life. TAG events have very much become a priority for me.

I am married to a very supportive husband and we have 3 children in their late teens/early twenties who all have grown up not seeing my disability as an issue but looking out for me. It is now them pushing me in my wheelchair rather than me pushing them in the buggy!!

Chris Davis

Hi, my name is Chris Davis. I am married to Donna Davis who was born with AMC and we have two children together. After seeing how much TAG have supported Donna and our family over the years I have decided to join my wife as a trustee and dedicate my time to help others with AMC and TAG as a Charity.

 Dean Broome 

My name is Dean Broome, I am 49 years old and was born with AMC. I am married with 3 grown up children, 2 step children and 3 grandchildren.  I live in Shropshire and recently became a trustee for TAG.  I also help out at my local orthopaedic hospital at Oswestry. I am looking forward to being a TAG trustee.

Pawel Ziemba

Hi, My name is Pawel Ziemba.  I have lived in Lancashire for 11 years.  I am a father of two sons.  Our younger son has been diagnosed with AMC.  This made me focus closer on the  Arthrogryposis condition.  We came across TAG and joined the group which we found very  supportive and helpful.  I am a civil engineerer with fair amount of free time which i can  spend on TAG helping the others and spreading the word about AMC. 

Hayley Ballentine

My name is Hayley and i live in County Durham.  I am married with 3 children.  My middle child Chloe, aged 18, has Arthrogryposis, Amyoplasia.  Chloe is affected in all her limbs but does not let it stop her.  She works full time as a clerical officer and has also learned to drive.  I look forward to being a trustee for TAG and giving something back to the charity after having a lot of support over the last 18 years.