Trustees

TAG Board of Trustees

Peter Lacey - Chair

I was/am mainly affected in my back and legs and was operated on very aggressively – by today’s standards – and successfully. I was lucky and had a normal education.

I worked in the finance side of a couple of companies in the UK. Then I got a job working in Papua New Guinea for their government. Pat and I loved it there for nearly eight years and both our sons were born there. I also worked in the Middle East for a couple of years. We decided to come home and we ran our own businesses.

I became involved in TAG over 20 years ago and in that time, until 11 years ago, I had been a committee member, treasurer, and Chairman.

Donna Davis - Secretary

Hello, my name is Donna Davis, I live in Wales with my husband Chris and 2 children, Sarah - Louise and Brandon - Lee. I was born with Arthrogryposis, it affects me in my arms, wrists, legs and feet. Most of my joints were fused at birth.

I am a qualified level 2 nursery nurse and have worked voluntary for Home start and in numerous schools and crèches with children between the ages of birth and 10 years old.

I have a lot of spare time and commitment that I can offer to TAG.

Gail Newton

I was born with my legs all folded up and had many surgeries to straighten them, I have worn full leg callipers since I was 3 years old. I did not meet anyone else with Arthrogryposis until I was almost 40 when I attended my first TAG meeting. I loved it and have so enjoyed getting to know many people who cope with issues as I do and still thrive in life. TAG events have very much become a priority for me.

I am married to a very supportive husband and we have 3 children in their late teens/early twenties who all have grown up not seeing my disability as an issue but looking out for me. It is now them pushing me in my wheelchair rather than me pushing them in the buggy!!

Chris Davis

Hi, my name is Chris Davis. I am married to Donna Davis who was born with AMC and we have two children together. After seeing how much TAG have supported Donna and our family over the years I have decided to join my wife as a trustee and dedicate my time to help others with AMC and TAG as a Charity.

Dean Broome

My name is Dean Broome, I am 49 years old and was born with AMC. I am married with 3 grown up children, 2 step children and 3 grandchildren. I live in Shropshire and recently became a trustee for TAG. I also help out at my local orthopaedic hospital at Oswestry. I am looking forward to being a TAG trustee.

Pawel Ziemba

Hi, My name is Pawel Ziemba. I have lived in Lancashire for 11 years. I am a father of two sons. Our younger son has been diagnosed with AMC. This made me focus closer on the Arthrogryposis condition. We came across TAG and joined the group which we found very supportive and helpful. I am a civil engineerer with fair amount of free time which i can spend on TAG helping the others and spreading the word about AMC.

Two new members following the 2019 AGM:

Vicky Adey

Vicky is also our Treasurer.