TAG Board of Trustees

Donna Davis - Secretary

Hello, my name is Donna Davis, I live in Wales with my husband Chris and 2 children, Sarah - Louise and Brandon -  Lee.  I was born with Arthrogryposis, it affects me in my arms, wrists,  legs and feet. Most of my joints were fused at birth. 

I am a qualified level 2 nursery nurse and have worked voluntary for Home start and in numerous schools and  crèches with children between the ages of birth and 10 years old.

I have a lot of spare time and commitment that I can offer to TAG.  

Charmaine - Treasurer

I’m Charmaine and am the current treasurer and a trustee for TAG. I’m originally from Ireland and moved to Essex in 1999.
I worked at Essex University after I completed my PhD in philosophy (briefly) before joining the Civil Service to work in various roles in immigration law.
My little girl has neurogenic Arthrogryposis. I found TAG really helped and speaking to and spending time with TAG members at the start of our journey. I hope I can give back to TAG what it did for my family and I.
It’s been wonderful to meet so many of the TAG members and I look forward to the Family Weekend.

Chris Davis

Hi, my name is Chris Davis. I am married to Donna Davis who was born with AMC and we have two children together. After seeing how much TAG have supported Donna and our family over the years I have decided to join my wife as a trustee and dedicate my time to help others with AMC and TAG as a Charity.

Sandra Donavan

Hi, I’m Sandra O’Donovan and I live in Leeds. My Arthrogryposis effects all of my limbs, so I do everything that I can with my chin and mouth.

I’m originally from Ireland and I moved to the UK in 2001 to study Performing Arts. I have been involved with disability groups and activism for over twenty years now. I am a bit of a geek and I love travelling, gaming, all things horror, and the Arts.  

 Luke Coggon

 Hi, my name isLuke Coggon, I am 31 years old and I live in South Yorkshire near Doncaster and   Sheffield, I currently work in the Petrochemical Industry as a HSE Advisor for a leading UK based   Engineering business. I was born with Arthrogryposis and it affects primarily my hands and my   Jaw.  I enjoy playing football, support Liverpool FC and spending time with friends and family. I am   hugely excited to use all my skills and abilities to help TAG Move Forward. 

Jennifer Arnott

Hi, I’m Jennifer Arnott and am 37 Years old.  I am a wife to Mike Arnott and mummy to Joshua. I work full time in a food shop and my favourite food is pizzas and roast dinner. My favourite programme is coronation Street. I belong the WI.

 Matthew Edwards

 My name is Matthew Edwards, I am studying Media and English Literature at Swansea University. I've been a   member of TAG all my life and became a trustee in 2021 to help represent the views of younger members of   the charity, and to ensure TAG continues to improve the support we provide, which has been so valuable to   me all my life. Growing up knowing people my own age with Arthrogryposis was a huge help to me, as well   as having role models to look up to and I believe this community is a key aspect of the support we provide.