Family Weekend 2019

Events

There are lots of TAG events scheduled for 2019 and more in the pipeline.

It's good to meet other members, make friends and have a fun day out together.

See TAG News & Events page for details of these and other events >>

Join TAG

As you can see we are an active group, both socially, providing support to members and families and also leading and assisting in research. If you have Arthrogryposis yourself and are not already a member, or if someone in your family or a friend has Arthrogryposis, why not consider becoming a member?

You can become a member by completing our registration form here >> or email help@arthrogryposis.co.uk.

Useful Information

We all need a bit of extra help sometimes. See our "Useful Information" page with loads of resources and information including Government benefits and concessions on offer to those with Arthrogryposis and people with disabilities generally.

Donate

Buy a T-Shirt and support TAG!

Ramped Up T-shirts

TAG member Matt produces a range of T-shirts to special designs. During July she is offering to donate £1 for every T-shirt sold to TAG. Have a look at her flyer and then go onto her website and order your design. More here >>

Update your wardrobe and support TAG too. We expect to see a lot of smart members at the Family Weekend in October!

July News!

Hi to you all,

We try and hold get-togethers around the country to allow members with Arthrogryposis Multiplex Congenita (AMC) and friends to meet up. These meetings are important as it enables children, and their parents and adults to get-together and swap ideas, stories, and hints! Just think about it, there are lots of children, their parents, and adults, who have already gone through much of which you may be going through. These get-togethers are a magnificent forum.

We have now had a couple of meetings at the Think Tank in Birmingham, and at the Barbican Conservatory in London. Both were well attended and lots of information exchanged and new friendships started.

As well as the get-togethers already arranged for quite a while - see below - here are some more recently arranged ones.

Sunday 4th August
Dartmoor Zoo, Sparkwell, Plymouth PL7 5DG

From 11am onwards. The visit is free to TAG members and their immediate family – you can join on the day for free remember - if you are not already a member that is. The actual meeting point is by the Jaguar restaurant. Parking is free. This is the zoo that the true story of the marvellous film called "We bought a zoo". Well worth a watch if you haven’t seen it.

Sunday 1^st September
Riverside museum, Pointhouse Place, Glasgow G3 8RS

From 11.30am onwards at the beautifully designed building right by the river. Entry is free and so is blue badge parking. There are things to see and do of interest to all ages.

Sunday 8^th September
Science and Industry museum, Liverpool Road, Manchester, M3 4FP

We will meet at the café from 11am onwards. As usual there are lots of things to see and do.

Get togethers long arranged are:

Saturday 27^th July
National Museum, Cathays Park, Cardiff, CF10 3NP

We re meeting at the coffee shop situated in the main hall from 11am. Information from Donna at donnadavis1985_tag@aol.com.

Saturday 17^th August
Tropical World, Princes Avenue, Roundhay, Leeds LS8 2ER

We will meet at the entrance from 11am and is free to members and their immediate family.

Sunday 15^th September
Exotic Zoo, Lakeside Plant Centre, Priorslee, Telford, TF2 9TT

We have lots of events planned for the summer and others in the pipeline. See News & Events >>

So keep looking at Facebook and our website. Remember any of these meetings are open to you wherever you may live. You may just be visiting the area for instance. It is always great to meet other people with Arthrogryposis and other parents of children with Arthrogryposis too.

And don't forget our

Family Weekend on Saturday 19th October and Sunday 20th October

It will be at the Jurys Inn hotel at Hinckley, Leicestershire. We were there 3 years ago, and it is a lovely, and very accessible hotel. More details and to book >

I hope to see you at one of our events or get-togethers this year.

Best Wishes

Peter Lacey

Chairman of The Arthrogryposis Group