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As you can see we are an active group, both socially, providing support to members and families and also leading and assisting in research. If you have Arthrogryposis yourself and are not already a member, or if someone in your family or a friend has Arthrogryposis, why not consider becoming a member?

You can become a member by completing our registration form here >> or email help@arthrogryposis.co.uk.

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November News

Hi Everyone
Well we are almost at the end of another year, and what a strange one 2020 has
been. Who could have predicted not only one lockdown but two?

Although the trustees have, like many of you been shielding, we have been keeping
TAG plodding along. The end of year accounts has now been completed these will
be able to view on the Charity Commission website within the next week or two. If
anybody has any questions please email treasurer@arthrogryposis.co.uk and cc in help@arthrogryposis.co.uk

Financially we are looking reasonably ok, however I would urge all of us to try and do
some fundraising for TAG.

On this note a huge thanks to Donna Davis who has been working tirelessly thinking
of ways to fundraise, the latest being a TAG raffle which has raised so far £135.52
which is great. If you would like to take part in our raffles, then they are uploaded
onto our website as well as the Facebookgroup -
https://www.facebook.com/groups/252538902852487/?ref=share

Donna has also set up a TAG lottery which is a £1 per month with lots of exciting prizes see TAG Lottery >>

I would also like to draw your attention to those who use Amazon, did you know you
can nominate TAG to receive an amount from your purchase(s) It’s called Amazon
Smile and very easy to set up. Please can I ask all our members to have a look into
it. As the saying goes “every little bit helps”.

As many of you know we have our TAG family weekend set for the beginning of May, we
have already had some confirmed bookings, and of course we are watching the
Coronovirus situation very carefully and, where necessary will take advice as to any
changes that may be needed. I am going to ask if you are interested in attending but
are unsure at the moment please can you email an expression of interest to
help@arthrogryposis.co.uk this will give us an idea of numbers.

We have 3 potential new trustees coming onboard, Charmaine Rodwell, Mike Arnott
and Luke Coggon so thanks to them for stepping forward. The voting will take place
at the AGM in May. We hope to be able to have some get togethers next year as
well as the Family Weekend but of course we are mindful again of the Covronovirus
and the impact it is having on our plans.

Unfortunately, on a sad note the Trustees announce the death of Matt Rangel, she
died on Saturday 14 th November. Matt was a very well-respected member of TAG
and had been a huge influence on many members. She made donations to the
charity through her t shirt printing and I know she will be deeply missed by all who
knew her. A card will be sent to her family expressing TAG’s sorrow at losing one of
our members. Funeral details are not known at present although with social
distancing I would imagine will be invite only. If donations are part of the funeral, I will
ensure one is made on our behalf.

I would like to end this newsletter by wishing you all (as much as possible) a Merry Christmas and a peaceful and safe New Year.

Best Wishes

Vicki Adey

on behalf of the trustees

Family Weekend 2021

Saturday 1^st May – Sunday 2^nd May 2021

The trustees are pleased to announce details of our forthcoming Family Weekend / AGM.

In a year of uncertainty and social distancing from friends and family this will be an ideal opportunity to bring some normality to our TAG family. Therefore, as there have been no events throughout 2020 we would like to see as many of you as possible.

TAG will be heavily subsidising this family weekend.

Details of event and how to book your place >>

We look forward to seeing as many of you as possible

Kind regards

TAG trustees