The TAG Family Weekend
Saturday 21 - Sunday 22 October 2017, Holiday Inn, Coventry
We have several very interesting speakers including specialists from Great Ormond Street Hospital and the top UK maxillofacial consultant, from Nottingham Queen’s Medical Centre.
We are having an employability workshop, a discussion session for older members, a carers advice group, and Maplins (the electronic group) will demonstrate features of a ‘Smart Home’.
This will also be a great opportunity to meet friends - old and new. We look forward to seeing you there.
Check the TAG Family Weekend page for details of the activities and how to book.
Events
Check the News & Events page for details!
If you are organising an AMC or TAG fundraising event, tell us about it. Let us help you spread the word by posting it on our site and social media.
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Peter Writes
An update from TAG Chairman Peter Lacey for TAG Members. Read more on the News Page.
Welcome to TAG,
The Arthrogryposis Group UK
Survey for Great Ormond Street Hospital on Clinic for Arthrogryposis
Consultants from GOSH in London are speaking at The TAG Family Weekend (only the weekend after next!). They want to use their discussions with TAG members and families to learn how best to extend and improve their Arthrogryposis clinic at the hospital.
To help them get more ideas and then expand them further at the Family Weekend, they would like our members to complete a survey. Whether or not you are coming to the Family Weekend would you please use this link to do the survey. Thank you, your input counts.
We are hoping the template they come up with can be used in other major hospitals in the UK.
There are now over 40 families coming but we still have spaces left for the weekend. Judging by past Family Weekends it will be enlightening, useful, informative, and surprisingly most of all FUN. We look forward to seeing you there!
About TAG
We are the national UK charity for people affected by Arthrogryposis Multiplex Congenita (AMC), a term used to describe over 300 conditions that cause multiple curved joints in areas of the body at birth. You can find out more by reading I have/I know someone who has AMC, which tells you more about the condition. There's a page for medical professionals too.
If you are a parent and have a recent diagnosis of Arthrogryposis for your child we want you to know that you are not alone. TAG has a wide membership, from parents with babies to adults, and that means a wealth of experience to share with you.
Getting In Touch
You can connect with us by email (help@arthrogryposis.co.uk) and telephone (07508 679351). Everyone who works for TAG is a volunteer, either a parent of a child with AMC or an adult with AMC. We strive to answer you promptly, but we are not a 24-hour service.
News and Events
Keep up to date by visiting the News Page. You'll find TAG events here, and other activities that may interest you, along with news from TAG members.
We know social media is a great place to connect with people. We have a Facebook Page and also a closed, private Facebook Group for TAG Members Only, available on request. We're also on Twitter and Instagram.
What We Do
Every year we hold The TAG Family Weekend, a time to meet and share our stories. It's a popular event, where seeing others just like you, whether that's as parents of a child with AMC or having AMC yourself, is a profound experience.
TAG also encourages members to hold smaller, regional get-togethers. and we continually look to raising the profile of Arthrogryposis within the medical community. Under the What TAG Does menu you'll find current projects, profiles of our Trustees, and our regulatory policies.
Join TAG
You can become a member of TAG by completing the form on our Become A Member page. If you're already a member but have changed your address or email in recent years, let us know via help@arthrogryposis.co.uk. Let us add you to our email newsletter list so we can let you know what's happening in TAG.
Supporting TAG
We welcome any help you can give us. From writing an article about Arthrogryposis, or disability in general, to having a cake sale to raise funds, to being a contact for new parents, there's always something you can do to support TAG.
Our Trustees work hard to plan events and cope with the administration of the Group. You can help them by offering your time and skills. If you have skills in producing email newsletters, or using Excel spreadsheets, or working with websites or organising events then TAG needs you. Many hands can make light work and keep TAG running smoothly. Contact help@arthrogryposis.co.uk and let us know what you can do for TAG.
For ideas on how to donate money to TAG visit our Donation page.
Useful Information
Visit the Useful Information page for a list of websites, covering a range of benefits, Government concessions and general dsiability information you may find helpful. Recently updated in June 2017. If this type of information is useful, let us know and we will continue to add more.