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TAG Family Weekend 2018

Less than 2 weeks to go before our Family Weekend. So you still have time to book and come along!

The Family Weekend and AGM is on Saturday 20 October and Sunday 21 October

at the Double Tree by Hilton Hotel at Paradise Way, Walsgrave Triangle, COVENTRY, CV2 2SR, just off Junction 2 of the M6. 

It is a really exciting time for the Trustees as we have everything arranged and in place, and looking forward to meeting members old and new.

Nowadays there are more adults with Arthrogryposis and some have considered the Family Weekend to be too child orientated with not enough information for the possible problems of ageing for AMCers. We have taken this on board this year and have arranged for two speakers specifically to cover this omission. Naturally, not only will ‘us old uns’ benefit, but it will help young families too, and see there is help around as we get older.

Of course, we still have a very experienced consultant who constantly deals with children with AMC to chat about children and AMC.

As usual we try and cover other aspects of life with having AMC.  We have a speaker from the Queen Elizabeth Foundation who is going to tell us the latest developments in access at airports, and onto and inside aircraft.

Motability are coming to talk about their scheme, and the help they can give you with driving in other ways as well. e.g. learning to drive.

As usual, we will have a discussion session and you will have plenty of time to chat to other attendees.

Those of you who have been before know how good the weekend is. Not only do you learn more about the condition from medical professionals, but you meet others with AMC and can swap information and gain knowledge too.  If you know of anyone who is thinking of coming then please encourage them to book now.

Full details of the TAG Family Weekend, itinerary and costs and how to book are here now >>

One of our members has a blog!

Becky Halliwell is first time mum and has arthrogryposis. Her blog atells the story of her life and being a new mum. Read here >>  

Would any of you like a pen pal?

We recieved this email from Sebastian in Chile who has AMC.

Dear TAG,

Hi. I'm Sebastian Cid, I'm 24 years old, I'm from Chile and I've AMC. I know your group surfing in internet and I would like take contact with you for share experiences and know how people with AMC live in other country. Chile still isn't an inclusive country, but we are working for that.