Events during 2018

There are lots of TAG events scheduled and more in the pipeline:

Look out for:

St. Fagans National Museum of History, Cardiff on Saturday 18 August
RAF Museum, Cosford, on Sunday 16 September

It's good to meet other members, make friends and have a fun day out together.

See TAG News & Events page for details of these and other events >>

Join TAG

As you can see we are an active group, both socially, providing support to members and families and also leading and assisting in research. If you have Arthrogryposis yourself and are not already a member, or if someone in your family or a friend has Arthrogryposis, why not consider becoming a member?

You can become a member by completing our registration form here >> or email help@arthrogryposis.co.uk.

Useful Information

We all need a bit of extra help sometimes. See our "Useful Information" page with loads of resources and information including Government benefits and concessions on offer to those with Arthrogryposis and people with disabilities generally.

Donate

Scottish Family Day and Conference

Saturday 25 August 10.00am - 4.30pm at the Falkirk Wheel, Falkirk

Come and enjoy a great day out across the border with TAG friends and colleagues. In the morning the conference will include speakers from various professional areas and in the aftenoon a canal trip!

This day is only 3 weeks away.

We have to advise the approx. numbers by Friday 3 August so would you please tell Ana – our secretary – on help@arthrogryposis.co.uk you are coming along to avoid disappointment. It would help, too, if you could advise us of the number of adults, and children, in your party, who the person is with Arthrogryposis and whether they use a wheelchair/powered chair/scooter?

This event is free to all members. Overnight accommodation is not included.

Although this is called the Scottish Family Day and Conference, it is open to any TAG member that wishes to attend.

More about the day and how to book >>

TAG Family Weekend 2018

This year the Family Weekend and AGM will be on
Saturday 20 October and Sunday 21 October

at the Double Tree by Hilton Hotel at Paradise Way, Walsgrave Triangle, COVENTRY, CV2 2SR, just off Junction 2 of the M6. Full details of the weekend, interary and costs are on the website now. If you have been before to one of our Family Weekends then tell other TAG members you know how good it is! Family Weekend 2018 >>

Would any of you like a pen pal?

We recieved this email from Sebastian in Chile who has AMC.

Dear TAG,

Hi. I'm Sebastian Cid, I'm 24 years old, I'm from Chile and I've AMC. I know your group surfing in internet and I would like take contact with you for share experiences and know how people with AMC live in other country. Chile still isn't an inclusive country, but we are working for that.

I'll hope your answer.

Regards,
Sebastián

If you'd like to correspond with Sebastián please email Donna at donnadavis1985_tag@aol.com who will put you in touch.

Research & surveys

Arthrogryposis is getting better known and understood in the medical and support professions. Arthrogryposis is involved in or at the centre of an increasing number of research projects and surveys. And they need help from TAG members - since you are the experts!

Current projects and surveys include:

NIHR Bioresource - Rare Diseases
Genetic Alliance UK
OT at Manchester Children's Hospital

We've just had a request from a Masters Student in Psychology at the University of East London to take part in research into wheelchair users. The student has arthrogryposis and uses an electric wheelchair, so we can be sure the survey questions will be relevant!

Take a look and take part if you can >>