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As you can see we are an active group, both socially, providing support to members and families and also leading and assisting in research. If you have Arthrogryposis yourself and are not already a member, or if someone in your family or a friend has Arthrogryposis, why not consider becoming a member?

You can become a member by completing our registration form here >> or email help@arthrogryposis.co.uk.

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Message from our Chairman

Hi everyone,

Here we are 2 months into ‘lockdown’ and I hope you are all keeping well, whether shielding, in self-isolation, or just being careful. I also hope the level of isolation you are in is not getting you down.

As you can imagine the Trustees have not had a lot do during this time, but we have not been idle, inasmuch we have been keeping up with Facebook, preparing the end of year accounts, answering emails, and maintaining some sort of contact with external organisations. We have been setting up Zoom between us and are experimenting having ‘chats’ electronically with the intention of having a remote trustees meeting.

I notice that Charlie Zivanovic and Matt Rangel – a couple of our long-term members – are also chatting through Zoom with other TAG members as a small group.

We hope with the PM’s easing of some restrictions will keep being extended and who knows we may be able to have a couple of regional meetings before the end of the year? I wouldn’t bank on it though.

Unfortunately, as you know we are not going to have our Family Weekend this year with its legally required AGM. The Charity Commission are allowing charities a lee- way of 12 months to carry over charity’s reporting because of Covid-19.

Dean Broome who has been a trustee for 3 years has decided to step down. Thank you, Dean, for the help, advice and your contribution to the trustees and TAG generally. He isn’t disappearing as he will continue to represent us at the AMC clinics in Oswestry, and Birmingham. Luckily, we have had 2 volunteers that have offered themselves to become trustees, thank you.

However, we are still looking for more trustees so if you are interested then please contact us.

When we get back to ‘normality’ - whatever and whenever that may be – TAG would like to be ready to run. This especially includes the various clinics. Like the trustees we are still looking for volunteers that can represent TAG and chat to the parents attending these clinics with their children. We will of course give the simple training that’s needed to enable you to do this. Again, if you are interested please contact us.

I know we have to be sensible as many of us have underlying conditions so please be careful.

Best wishes from all the Trustees,

Peter

TAG Family Day 2020

In view of the current corona virus pandemic, we, as a board of trustees have taken the decision to postpone this years' family day. We aim to deliver this event at some point during 2021 along with regional events and as soon as we can we will publish the details.

We also have postponed our trustees meetings until further notice while the UK is under social distancing, this is for our well being and I am sure you will all understand the reason behind this. Rest assured we are all in contact via email and telephone and as soon as we can it will be business as usual. Therefore please bear with us while we all get through this unprecedented situation.

Family Day 2020