Help TAG to Help others with Arthrogryposis

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October 2025 Updates

Hello to you all from the trustee's. 2025 is flying by and we are now on the final count down to the Family weekend 2025 with less than a week to go. 

In this Issue: 

  • Family Weekend Agenda and essential information for those attending
  • 2025 AGM meeting link and agenda
  • Information about raffle fundraisers taking place.
  • Information about becoming a trustee

 

Family Weekend Agenda

See below our agenda for the Family weekend this year. 

There will be representatives from the board of trustees available on site from 9am each day. The help@arthrogryposis.co.uk e-mail will continue to be monitored throughout the weekend, please note that the TAG mobile will not be available as a method of contact.

 

2025 AGM Information and Agenda

Any member over the age of 18 may join the AGM in person or online via the link provided here: 

TAG AGM  [In-person] | Meeting-Join | Microsoft Teams 

 

The Arthrogryposis Group 2025 AGM Agenda:

  1. Welcome
  2. Apologies
  3. Review and approval of 2024 AGM minutes
  4. Re-election of trustees
  5. Finances - including family weekend 2025
  6. Fundraising
  7. Future events including Family Weekend 2026
  8. Any Other Business

 

TAG Raffle

As with each family weekend we will be hosting the raffle in the evening on Saturday 18th October. All funds raised from the raffle go directly to TAG.

Here is a sneak peak of some of the prizes: 

  • Hotel Stay with Village Hotels
  • Emma Bridgewater Polka Dot Stand Mixer by Russell Hobbs 
  • Children’s Ride on pedal trator (CLAAS) (this will be posted directly to the winner as the box will take up the boot of most family cars)
  • Go Karting courtesy of Team Sport
  • £50 Ocado Voucher
  • £10 Greggs Voucher
  • 2 Ravensburger 1,000 piece puzzles
  • Chocolates and biscuit selections

 

If you are not attending the family weekend but wish to buy raffle tickets, please e-mail help@arthrogryposis.co.uk

 

Win a Signed Manchester United Harry Maguire Photo! 

We’re excited to announce a special raffle in support of The Arthrogryposis Group!

 

Prize: An official Manchester United photo signed by club captain Harry Maguire

Tickets: Available now at https://raffall.com/399568/enter-raffle-to-win-a-signed-manchester-united-harry-maguire-photo-hosted-by-the-arthrogryposis-group

Every ticket helps us continue supporting individuals and families affected by Arthrogryposis.

 

A huge THANK YOU to the Manchester United Foundation  for generously donating this amazing prize! This is a Genuine product from the Manchester United Foundation. A certificate of authenticity is available. This will be sent with the product after TAG confirms fundraising numbers to the Manchester United Foundation. Shipping of the item will be between 4-6 weeks after the completion of the raffle.

 

Please share with your friends, family, and networks—every share helps us reach more people and make a bigger impact. This raffle closes either when all tickets are sold or on Saturday 18th October at 6pm, which ever is soonest. 

 

Becoming a Trustee

Coming up to the Family Weekend we are always looking for people to become new trustees. We do have 2 Trustee's stepping down from the board at this AGM and we would like to thank them for their service and dedication to TAG. 

If you are interested in becoming a trustee please read the below:

 

Fundraisers

We Need you! 
Making a difference starts with one great idea—and your fundraiser could be it! Whether you're planning a bake sale, a fun run, a charity auction, or something completely unique, organising a fundraiser is a powerful way to support our cause and bring people together.

Why fundraise with us?
Every event you host helps raise vital funds and awareness for TAG. Your efforts directly support our programs, enabling us to reach more people and create a lasting impact.

Getting started is easy:

  • Choose your event: Pick something you’re passionate about—big or small.
  • Register with us: Our fundraising partner is JustGiving. You can link your JustGiving page to TAG by clicking here and selecting fundraise for us.
  • Spread the word: Use your networks and social media to build excitement and boost donations.
  • Make it happen: Have fun, celebrate your success, and see the difference you're making.

 

Need inspiration or help?
We’re here for you every step of the way. Reach out to use via our contact page and we will get back to you as soon as we can. 

Fundraising

TAG relies on donations to continue the good work that we do. Without this, we would not be able to host the events and support that we provide to members every day. If you can help, please check out the details on our Fundraising page using the button below

Medical Professionals

We are constanstantly looking to improve our connections with the medical community. Arthrogryposis effects 1 in 300,000 people and there is very little research into the condition. We have a whole section on our website dedicated to medical professionals and improving these connections. Check it out